Monday, February 9, 2009

The list of...is this the right list?

So...people, including you, blog people, are amazing. AMAZING. Since we first got a whiff of bad news, we've been INUNDATED with kindness of all kinds. Offers to give us food. Care for the kids. Drive us places. Pray for us. NOT pray for us. Do the woo-woo dance for us. Vet our MD choices. Tell us your stories. Tell us you are thinking of us. It's a big load of awesome, and you, blog people, are really, really deserving of all the good, best things. We'll be repaying everyone for the rest of our lives. Thank you, thank you, thank you. So now, I'm trying to figure out how to harness the kindness without knowing, at this point, what we might need. Here's the general lay of the land:
  • We need babysitters for a couple of appointments we had anyway. This has nothing to do with the surgery, so don't be duped into thinking it's helping us in a way we wouldn't normally have asked. So...that, but we've probably got it covered. (thanks MNMs)
  • We then also need babysitters for a couple of MD appts. This could include picking up the kids from their so-awesome preschool. At this point, we're a bit in the dark about how long it takes to talk to surgeons and jump through their hoops.
Once the surgery is scheduled, we'll need a couple of specific things:
  • The day of surgery, we might need someone to take the kids to preschool. Or pick them up. Or both. And to hang with them until I come back from the hospital.
  • The week after the surgery, if the kids can't visit Jamie, we might need people to help me take care of them while ~I~ go visit him in the hospital every day. I'll be working FT, but after work would like to be able to see J for a while before I go make things as normal as possible for the kids. Again, whether they can visit, visiting rules and hours, all unknown.
  • The month after Jamie comes home, he'll be not doing much. And possibly bored. He might want a visit, but since he's vaguely surly at the best of times, he might want no visits. He might appreciate funny e-mail. Facebook jokes. DVDs or music. His mom will be staying with us that first week after he comes home, and she's amazing. But after that, I don't know what J will do with his time or how he will get his needs met.
  • He also can't drive for the next 6-8 weeks after surgery. Since I'm concerned about the impact to our $$ if I take time off work, I might ask someone else to help drive him to a few of his follow-up appts. Which might be numerous or not. So many unknowns.
Food.
  • We would love a few meals, and would be a huge relief to not have to think about every one of them during the time right around the surgery. BUT... hum. But we ALL are going on a cholesterol-conscious diet. Forever. Jamie's problems are hereditary, which means the kids have to eat the same healthy things he does. This means our foods need to be super low fat, low-processed, low...whatever it is I like in food, I think I can't enjoy it again. Jamie is living vaguely vegan right now (he eats fish and fish oils, but no other meat, dairy or eggs). I hate having to follow other people's food restrictions, but as with many things, the thing I most don't want to do is the thing I'm doing. So...vegan. PITA, but there it is. So, while we would worship you, it might just be more than most people could do.

I don't even know what to say. It feels all grabby to put this out there, but...I am. And I hope it's clear: I love everyone who has offered. We are grateful and humbled. Thanks...

Saturday, February 7, 2009

Down the rabbit hole...

Here's the word on Jamie's heart, actually two: Quadruple bypass Here's another one: ASAP (maybe technically that's four) So...here we go. I'm already overwhelmed by lists. What do do next. Who to call. How to cope with the 4000 things that have to be done: phone calls. A zillion of those. Scheduling everything. The budget. OMG. We don't have awesome insurance. In fact, we took a gamble and LOWERED our insurance a couple of years ago. So now...our out of pocket for this is going to be pretty high. Today's is Zel's 2nd birthday. Next week we start kindergarten round-up at the FIVE schools we're trying to get into. That's five times 2-3 meetings with each. So...that. Jamie will be out of work for 6-10 weeks. I can't take time off. Because? Money. So we're figuring out who can come help out with his needs. Hopefully his mom. And we're getting 2 opinions next week on surgery options, but it's pretty clear: there are five blockages in his coronary arteries. Waiting, as the cardiologist put it, is like adding a lot of "the unknown" to our choices. Frankly, I liked it when THIS was "the unknown".

Wednesday, February 4, 2009

A little more cheez, please

I may or may not have heard this song before this morning. It hasn't registered with me. But it was playing on the radio during my drive in, and I should have pulled over, the way it made me...oh, sap out. I love this guy's voice and the passion just resonated so deeply with me today.